ASXL Rare Research Foundation
"We support research and education that lead to improved quality of life for individuals with ASXL syndromes.
We're a family-led organization supporting research to increase the understanding of the ASXL gene family and improve care for those living with Bohring-Opitz, Shashi-Pena, and Bainbridge-Ropers Syndromes." - https://www.arrefoundation.org/arre-foundation
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Financials
$475k
2024 Budget
80%Program Spend
15%Management Spend
5%Fundraising Spend
80%
15%
5%